Kc Cares Online Podcast

Rare Diseases | KC Cares Episode 373

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Synopsis

Kansas City’s Nonprofit Voice! Sharing the stories of local nonprofits and connecting them with the community! We talk with philanthropists, volunteers, community activists, executive directors, and non-profit lovers from the Kansas City nonprofit community. Be seen, be heard with KC Cares! Kansas City’s Nonprofit Voice! On episode 373 of KC Cares, we talk with Michelle Davis, Executive Director with International Fibrodysplasia ossificans progressiva Association! Great discussion about rare diseases! Listen now! ••••••••••••••••••••••••••••••• International Fibrodysplasia ossificans progressiva Association | Sat Feb 15 2020  Michelle Davis, Executive Director and  Kelly Ranallo, President with RareKC/Turner Syndrome Global Alliance The IFOPA is a 501c3 nonprofit organization that provides hope to individuals with FOP and their families through education and support programs while funding research to find a cure and raising awareness for the rare genetic condition fibrodysplasia ossificans progressiva (FOP)